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North Carolina toddler battling rare Sly syndrome condition

Skylar Rodriguez was born three months early on Nov. 22, 2017, and only given 24 hours to live.

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"Her kidney wasn't working. Her liver's enlarged. She couldn't breathe on her own," her grandmother, Cindy Washington, said Wednesday.

The newborn was diagnosed with an extremely rare disease known as mucopolysaccharidosis type VII.

Her mother, Hunter Howard, said they are one of the first cases in this part of the United States.

"They told us there are only 150 people in the whole world that have this," Howard said.

The disease is also known as MPS7 or Sly syndrome. Patients with it are missing a key enzyme needed for healthy body function.

Body tissue and organs are damaged because of the disease. The result is a very short life expectancy for the now 7-month-old.

"At this point, they're saying that she won't live a year," Washington said.

Skylar's family said they have received world-class care at Novant Health Presbyterian Medical Center while coming to grips with their new reality.

"I'm thankful, there couldn't have been a better team to take care of Skylar," Washington told us.

But the clock is ticking with no cure for MPS7.

Late last year, the Food and Drug Administration approved the first-ever treatment for MPS7. It's an enzyme therapy drug.

However, the family's being told it will cost them $200,000 per year.

That's money they don't have, and the family is left hoping Medicaid will agree to cover the cost of treatment.

"Skylar needs it now, 'cause that medicine just might save her," Washington said.

They are left to wait for an answer about treatment and said they'll cherish every moment they have for now with Skylar.

"She's the light of my life, and I would never want that to dim," her mother said.

Doctors are allowing Skylar to leave the hospital on July 5.

Her condition will be closely monitored from home.

2 arrested after child falls out of moving car, slides across Idaho road

Two people were arrested in Idaho after a toddler who was unrestrained in a car seat fell out of a moving car -- and the driver did not stop his vehicle, KTVB reported.

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Police in Boise said they received a call at 7:53 p.m. on June 15. According to witnesses, the car’s back seat flew open as the driver made a right turn. The 2-year-old child and the car seat spilled onto the road, KTVB reported.

A witness retrieved the boy -- who was not buckled into the seat -- off the road. The child suffered bruises to his left cheek and was taken to a hospital, the television station reported.

Moments later the driver of the car -- Cesar Cabana Ripoyla, 57, of Boise, returned to the scene and dropped off the boy’s mother, Ashley Pantoja, 25, also of Boise -- and drove away, police said. 

Officers later discovered that two other children were in the car and were not properly restrained, KTVB reported.

Pantoja was arrested and three felony injury to a child charges were filed against her on Wednesday. She is being held without bail at the Ada County Jail. Ripoyla is also being held on three felony injury to a child charges and one felony count of leaving the scene of an accident resulting in injury or death. He is also being held without bond, KTVB reported.

Couple finally engaged after airline lost luggage containing ring 

A Texas couple is formally engaged after the bride-to-be’s engagement ring was lost in a luggage snafu for nearly three weeks, WFAA reported.

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Ben Adams and his girlfriend Elizabeth Kahle landed at Dallas-Fort Worth International Airport two-and-a-half weeks ago after a trip to Europe.

Adams hoped to propose to Kahle at her family’s home in Frisco, Texas. But the engagement ring was in one of his suitcases, and during a layover in Iceland all of their luggage was misplaced, WFAA reported.

The luggage was on Iceland-based WOW Airlines. When their flight to Dallas was canceled, Adams and Kahle were rerouted to New York and then Atlanta before finally reaching their destination. 

Adams had to confess to Kahle that the engagement ring was in his luggage, WFAA reported.

“The stakes just went from here to here!” Kahle told the television station.

Adams eventually discovered that their luggage was sent to Boston. The bags were shipped home, and Adams made his formal marriage proposal Wednesday night, WFAA reported.

Kahle said yes.

Judge asked to lift Florida's campus ban on early voting

TALLAHASSEE, Fla. (AP) - A Florida voting rights group is asking a federal judge to let college campuses be used for early voting sites in this year's elections.

The League of Women Voters of Florida and several college students sued Secretary of State Ken Detzner over the ban back in May. But on Thursday, attorneys for the group asked for a preliminary injunction that would block the state from enforcing the ban.

Detzner in 2014 told officials in Gainesville that they could not use the University of Florida student union as an early voting location. He said the early voting law does not allow it. The state does allow voting on college campuses during Election Day.

The group suing the state contends he is misinterpreting the law. Gov. Rick Scott's administration has called the lawsuit "frivolous."

Washington mom bathes 1-year-old son in bleach to keep him alive 

A 1-year-old Washington state boy battling a rare genetic skin disorder is bathed twice a week in bleach to deter infections, USA Today reported.

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Alicia Barber of Chattaroy gave birth to Jamison Stam in May 2017. The boy was born with harlequin ichthyosis, a recessive inherited disorder. Jamison is covered with plates of thick skin that crack and split apart, according to the First Foundation for Ichthyosis and Related Skin Types.

Harlequin ichthyosis affects about one in 500,000 people, according to the National Organization for Rare Disorders

Jamison was given no chance to live.

"I was severely depressed," Barber told USA Today, "I didn’t go to see him. The state felt like I couldn’t provide proper care for him at that time."

Jamison was in foster care for five months late last year. Barber went to counseling and said she decided to be "the mom Jamison needed me to be" and take over the boy’s day-to-day care. As a mother to a 7-year-old and stepmother to a 6-year-old boy, Barber knew it would be a full-time job.

Jamison's doctors recommended a bleach bath to prevent infections, but they are painful. Barber gives the child morphine to ease the pain, but worries that it affects his already slow breathing, USA Today reported.

"Some days I wake up and I think how am I going to get through another day," Barber told USA Today. "That small voice says ‘Alicia we are going to do this.’ … God is carrying me the most."

Barber said she wants Jamison to have “an amazing life,” She has raised more than $38,000 through a 

Watch: Priest slaps crying baby during baptism ceremony 

It’s not unusual for a baby to cry during a baptism ceremony. What is strange is when a priest slaps the baby in an effort to quiet the child.

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Reddit user posted video that shows a priest using his left hand to slap the baby. The user wrote “This happened today in France, I’m really shocked,” although an exact day and location was not specified.

The video, also posted on YouTube, has a French title that translates to “A priest slaps an infant during his baptism.”

IN the vdieo, the priest first attempts to comfort the baby, hugging the child. When that doesn’t work, the priest quickly slaps the baby.

The man and woman in the video -- either the child’s parents or godparents -- were taken aback by the priest’s action.

The man wrestles the child away from the priest as the video ends.

Dozens of Amazon job seekers turned away after Facebook hoax 

Many local job seekers were turned away from the soon-to-open Amazon Fulfillment Center early Thursday morning. 

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fake Facebook post caused dozens to come down to the center in Southeast Memphis. The post claimed the job fair was starting at 7 a.m., and ending at 10. 

A security guard said people were on site as early as 4 a.m., only to learn no fair was happening.

"I seen on Facebook they had a job fair," Terry Croom said. 

Croom was one of dozens who were turned away. They were rejected by security guard Theodore King, who broke the bad news. 

"I got here at 6 and it was pretty hectic," King said. 

Amazon is aware of the job fair hoax.

Memphis has an unemployment rate of 4.4 percent. Amazon officials said they are aware of the hoax and said they will announce when a legitimate job fair is forthcoming.

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